My 18 Week Ordeal of Double Trouble
By Dr.
Lakshman Abeyagunawardene
I thought of writing this article in
order to share with readers of the Sunday island newspaper, my recent
experience as a patient suffering from two illnesses at the same time. I could
describe this period as sheer mental agony as I had to bear the social as well
as possible medical consequences of illnesses that plagued me over a prolonged
period. Writing newspaper articles in my opinion is one of the best ways in
which at least one section of the community can be educated on Health issues.
My professional career called for
frequent lectures to be given to a wide variety of target audiences ranging
from postgraduate doctors preparing for examinations in Community Medicine and
medical students, to humble village folks like new settlers in Mahaweli areas
in the late seventies and early eighties. I always made it a point to emphasise
the fact that the occurrence of disease is not only a biological phenomenon but
a social one as well, a point that I picked up in my postgraduate training and
which has somehow got etched in my mind through conviction. Subsequent
developments as described later led to the worst period when I was confined to
the Guests’ Room in my home as I was not permitted even to climb the stairs
that led to my comfortable bedroom upstairs. The move which was to last several
weeks, involved shifting many personal items which were indispensable in day to
day life.
It all began with a rash on the right
side of my face involving the nose, cheek and areas around the eye. Although I
suspected Herpes Zoster (commonly called Shingles) particularly because I recalled
a bout of Chicken Pox over 50 years ago, soon after my Internship while working
at the Colombo South Hospital. Although it is a self-limiting disease, I
decided to seek medical attention because as far as possible, I try to stay
away from self treatment except for very minor illnesses. Herpes Zoster is a viral infection that occurs with reactivation of the
varicella-zoster virus that had been lying dormant in certain nerves for many years. Symptoms
typically start with pain and a rash along the affected path of the nerve,
followed 2-3 days later by a vesicular eruption.
With an all hours curfew in force,
that weekend happened to be one where all “Channel Centres” were deserted. I , therefore, decided to go to the Emergency Room (ER) of Sri Jayewardenepura
Hospital (SJPH) where the doctor confirmed my diagnosis and prescribed an antiviral drug called Acyclovir, pain killers Gabapentin and Panadeine. I was also
referred to the Ophthalmic (Eye) Ward because my right eye seemed to be
affected. Fortunately, the Senior Registrar on duty ruled out any involvement
of the eye and said that my vision was normal. This was confirmed by the Consultant
Ophthalmologist (Eye Surgeon) whom I later channelled as I was very concerned
about my eyesight. As always, I diligently took all prescribed drugs but at the
end of two weeks, I, unfortunately, developed Postherpetic Neuralgia (PHN) which
is a known complication of Shingles.
I had heard of Post Herpetic
Neuralgia (PHN) but never imagined that it was so painful. In general, all pain
due to Neuralgia is very painful, difficult to treat and lasts a long time. I
realized through experience, what it is like to be the sufferer rather than a
doctor treating a patient.
Quite apart from my present illness, I
was having spells of dizziness off and on, which I attributed to Gabapentin
which is known to cause such side effects. On one such occasion, it was so bad
that I was about to fall. Fortunately, we were in our bedroom and my wife was
at hand to prevent the fall and led me to my bed. My wife was quite helpless in
such situations and called my son who
lived close by and called for an ambulance. My son and the ambulance arrived almost
simultaneously, but as I had not lost consciousness, I was able to explain to
the paramedics that I was on Gabapentin and did not need hospitalization.
Whether or not the paramedics understood what I said, they withdrew mainly
because their patient was a doctor and knew what he was doing!
On a subsequent occasion, I had a
syncopal (fainting) attack while I was having breakfast and my wife again had
to go through the usual motions of calling my son and informing the ambulance.
This time, I had lost consciousness and when I was back to normal, I myself
thought that it could not have been due to the Gabapentin. Therefore, I didn’t
resist hospitalization as I previously did. These two episodes clearly showed
the importance of family support. I dread to think what a bachelor living alone
would have done under such circumstances.
For a number of years, I have been
having an irregular pulse. This drew my attention when it continued and my
cardiologist referred me to a Cardiologist and Electrophysiologist who put me
on what is called a Holter Monitor. After reading the report he said that I
have a few extrasystoles (ectopic beats) and that accounts for the irregular
pulse. He further said that it is normal for some people and I needed no
treatment. Mind you, that was about six years ago.
This time round when I lost
consciousness, to cut a long story short, after the necessary referrals were
made, the EEG that my Neurologist ordered showed some changes and my doctors
decided that the origins of the changes had nothing to do with my nervous
system but that its origins were cardiac (meaning that the origin of the EEG
changes could be due to some defective movement of electrical impulses in the
heart). So, I went back to my cardiologist who referred me to a Cardiologist
and Electrophysiologist. The latter put me on a Holter Monitor again. Based on
the history and the new Holter Monitor reading, he recommended a
Pacemaker. I readily complied and he
implanted a Permanent Pacemaker on September 8th. Sutures were removed after about a week and I
had to attend a “Programming Session” on September 27th. The doctor
reported that the surgical wound was clean and that the whole procedure was
successful. The implantation of the pacemaker did not bother me at all, but the
anxiety of anyone facing a surgical operation was telling on me.
I had to go through the procedure of
pacemaker implantation while the pain in my right eye persisted. It was after
my fainting episode and pacemaker implantation was recommended that I was
debarred from climbing stairs. I was confined to the Guests’ Room and this is
where my agony really started. My wife did not allow me to go even to the
living room which was just three steps below. Towards the latter stages, I
watched the news on the small TV in the kitchen. I had to be satisfied with the
laptop computer that my son brought. But it was a far cry from the Desktop I
was used to. I missed my weekly shot of an alcoholic drink! I had not taken
even a beer since the beginning of June.
I think I had a turnaround in my
fortunes after the doctor did the Programming on September 27th. It
was this doctor’s advice that I strictly followed (more so my wife and son)
because there was nothing more the Neurologist who was treating my neuralgic
pain could do. The electrophysiologist
who did the pacemaker implantation asked me to resume my regular evening walk but
advised me not to drive the car till the end of October. When I asked him whether I could take my
weekly shot of an alcoholic drink, he jokingly asked me whether it was Single
Malt or Scotch. I replied that I take Single Malt, Scotch, Gin, Rum, Vodka,
Tequila and even Ceylon Arrack in rotation, depending on availability. More than anything else, I was happy to be
back in my bedroom, using my toilet, 52 inch TV in the TV room and the Desktop
in my study.
Once the Eye Surgeon said that my
vision is intact and the Cardiologist had successfully implanted the Pacemaker,
I was free to take some decisions on my own. As I was bothered by the
persisting pain in the eye, I went back to using Gabapentin when the eye pain
was severe (discontinued since that episode of dizziness). Picking up
information from the Internet, I started trying some home remedies like washing
my eyes and using a warm compress frequently.
I also started taking a course of Vitamin B Complex and refrained from
eating Bananas and Citrus fruits to help in the recovery of damaged nerves. If
I continue to recover from the eye pain and the other minor symptoms of PHN, I
will not be able to pinpoint and say that it was one specific intervention named
above that was responsible for the turnaround. Being a doctor myself also
certainly helped in many instances.
However, I had resigned myself to think that recovery from PHN is very,
very slow. As I recover slowly from PHN, I painfully realized the plight of
many who are affected by Neuralgic pain and continue to suffer.
As a precautionary measure, I still
keep away from my mobile phone and the microwave oven. The Pacemaker also
restricts my movements of the left arm. I will continue to live with such
restrictions for some more time. But I know that I have already seen and
experienced the worst of this period of agony.
ADDENDUM by ACTING ADMIN
This is written mainly for the benefit of those
who don't read Sri Lanka newspapers.
Lucky’s article appeared in the
Island on-line newspaper on Sunday 25th of October and here is the
link:-
https://island.lk/my-18-week-ordeal-of-double-trouble/